Kinsley is truly a miracle in every sense of the word. She is a true gift to her parents and extended family. She was born after several years of "trying" and she's just in one word AWESOME!!
Kinsley was born with a tumor on her left clavicle that was intially believed to be a hemangioma after an ultrasound was performed just a short 18 hours after her birth it was confirmed by a surgeon and radiologist that it appeared to be a hemangioma and the surgeon requested that we follow up with him in 3-4 weeks. When we went for the follow up on Auguest 27, 2012 the surgeon thought it might need to be removed as it appeared "harder than a normal hemangioma"
On September 7, 2012 Kinsley went in for surgery to remove the mass and when the surgeon came out he shared that it was possibly a sarcoma and it was we had to wait on pathology. Later that same day, Kinsley had a CT Scan and then the next day a bone scan. All of this was a complete SHOCK to her family as they thought it was just a hemangioma. Both the CT scan and bone scan showed negative but initial pathology suggested that they needed to remove a larger margin around the mass. Kinsley was sent home to recover and heal up. All of her pathology was sent to the Children's Oncology Group for further study and was told to come back on Monday, September 17, 2012 to have a larger margin removed and for a port placed for chemotherapy. After they removed the dressing , the incision was oozing and they decided to reopen the incision to let it drain and test the fluid. The fluid came back to be an infection and she was started on 2 different IV antibiotics which necessitated a longer hospital stay.
Tuesday, September 25, 2012, the final pathology was received as Spindle Cell Rhabdomyosarcoma (RMS) Stage 2 Goup 1. A bilateral bone marrow aspiration is planned for September 28, 2012. Chemo will begin October 1, 2012. Kinsley will have 24 weeks of treatment with the 1st 10 weeks being weekly then followed by every 3 weeks.
Unfortunately medical insurance does not cover all the expenses that now must be incurred - hospital co-pays, medicines, weekly travel to the hospital, time off from work and the list goes on.
The medical costs were completely unforeseeable. How could ANY of us had known what the future was going to bring when Kinsley arrived?
Kisses for Kinsley on Facebook( http://www.facebook.com/KissesForKinsley) is dedicated to Kinsley by helping her& her parents get through this, beat the RMS & allow them all to have a normal life together one day. Kinsley is a fighter... she was a fighter before she was even born. There are many, many reason why God has her here and she has a HUGE story to tell one day.
Kinsley's chemo will last through the Summer of 2013 so there is a long road ahead. Whether its $5 or $500, every dollar will help! http://www.giveforward.com/kissesforkinsley
Thank you so much for your love & support!!
